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Publication
A dor nos adolescentes com paralisia cerebral: dados preliminares do Programa de Vigilância Nacional da Paralisia Cerebral
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Advisor(s)
Abstract(s)
A dor afeta negativamente a vida das pessoas com paralisia cerebral
(PC). Este estudo explora a prevalência de dor significativa em adolescentes com PC em Portugal e o seu impacto multidimensional. Foi
estudada uma amostra de conveniência de adolescentes registados no
Programa de Vigilância Nacional da Paralisia Cerebral (PVNPC) aos 5-8
anos de idade, seguindo o protocolo comum da SCPE, nas duas regiões de Portugal com maior cobertura regional, Grande Lisboa e Alto
Minho. Foi estimada a prevalência de dor e das suas características e
exploradas associações com aspetos funcionais, gravidade, complexidade do quadro clínico e participação social. Obteve-se informação
sobre a presença de dor em 107 de 164 adolescentes (65%). Referiram
ter dor 36 adolescentes (34%; IC95% 25,4-43,0); 21 (58%) localizaram a dor à anca, 17 (47%) aos membros inferiores, 7 (19%) à coluna
e 3 (9%) nos membros superiores. A dor foi referida em 13% dos adolescentes com 0 indicadores de complexidade e em 51% daqueles
com 1 ou mais indicadores de complexidade (Odds Ratio 7,1; IC95%
2,30-26,63; p<0,001). Todos os adolescentes com 4 indicadores de gravidade reportavam experiência de dor. A dor afeta cerca de 1/3 dos
adolescentes com PC, sendo tanto mais prevalente quanto maior a
complexidade da PC. A gestão da dor deve ser uma prioridade clínica
estratégica na PC, promovendo-se a implementação de modelos individualizados de avaliação e controlo. O PVNPC continuará a avaliar o
impacto da dor na funcionalidade, na qualidade de vida e nos níveis
de participação das pessoas com PC.
Pain has a negative effect on the life of people living with cerebral palsy (CP). We explored the prevalence of significative pain among adolescents with CP in Portugal and its multidimensional impact. We reassessed a convenience sample of adolescents registered at age 5-8 year-old to Programa de Vigilância Nacional da Paralisia Cerebral (PVNPC), following the SCPE protocol, recruited from the two Portu guese regions with higher coverage rates, Greater Lisbon and High Minho. The prevalence rate of pain was estimated, it was characte rized and associations with functionality, severity and clinical com plexity and social participation were explored. Information on the experience of pain was obtained from 107 of 164 adolescents (65%). Pain was reported by 36 adolescents (34%; IC95% 25.4-43.0); pain was located on the hip by 21 (58%), 17 (47%) on the lower limbs, the spine by 7 (19%) and by 3 (9%) on the upper limbs. Pain was repor ted by 13% of those adolescents with 0 indicators of complexity of CP vs. 51% of those with 1 or more indicators of complexity (Odds Ratio 7.1; IC95% 2.30-26.63; p<0.001). Every adolescente with all 4 indica tors of complexity reported the experience of pain. Pain affects circa 1/3 of the adolescents with CP. Prevalence increases with the com plexity of CP. Pain management skills must be a estrategic clinical priority in CP, the implementation of individualized models for asses sment and control being promoted. PVNPC will preservere on asses sing the impact of pain on funtionality, quality of life and the levels of participation of people with CP.
Pain has a negative effect on the life of people living with cerebral palsy (CP). We explored the prevalence of significative pain among adolescents with CP in Portugal and its multidimensional impact. We reassessed a convenience sample of adolescents registered at age 5-8 year-old to Programa de Vigilância Nacional da Paralisia Cerebral (PVNPC), following the SCPE protocol, recruited from the two Portu guese regions with higher coverage rates, Greater Lisbon and High Minho. The prevalence rate of pain was estimated, it was characte rized and associations with functionality, severity and clinical com plexity and social participation were explored. Information on the experience of pain was obtained from 107 of 164 adolescents (65%). Pain was reported by 36 adolescents (34%; IC95% 25.4-43.0); pain was located on the hip by 21 (58%), 17 (47%) on the lower limbs, the spine by 7 (19%) and by 3 (9%) on the upper limbs. Pain was repor ted by 13% of those adolescents with 0 indicators of complexity of CP vs. 51% of those with 1 or more indicators of complexity (Odds Ratio 7.1; IC95% 2.30-26.63; p<0.001). Every adolescente with all 4 indica tors of complexity reported the experience of pain. Pain affects circa 1/3 of the adolescents with CP. Prevalence increases with the com plexity of CP. Pain management skills must be a estrategic clinical priority in CP, the implementation of individualized models for asses sment and control being promoted. PVNPC will preservere on asses sing the impact of pain on funtionality, quality of life and the levels of participation of people with CP.
Description
Keywords
Paralisia Cerebral Dor Prevalência de Dor Adolescentes Vigilância Epidemiológica Programa de Vigilância Nacional da Paralisia Cerebral Estados de Saúde e de Doença Avaliação do Impacte em Saúde
Pedagogical Context
Citation
Boletim Epidemiológico Observações. 2023 janeiro-abril;12(33):60-66
Publisher
Instituto Nacional de Saúde Doutor Ricardo Jorge, IP