Browsing by Author "Samdal, Oddrun"
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- Encouraging greater empowerment for adolescents in consent procedures in social science research and policy projectsPublication . Samdal, Oddrun; Budin‐Ljøsne, Isabelle; Haug, Ellen; Helland, Trond; Kjostarova‐Unkovska, Lina; Bouillon, Claire; Bröer, Christian; Corell, Maria; Cosma, Alina; Currie, Dorothy; Eriksson, Charli; Felder‐Puig, Rosemarie; Gaspar, Tania; Hagquist, Curt; Harbron, Janetta; Jåstad, Atle; Kelly, Colette; Knai, Cecile; Kleszczewska, Dorota; Kysnes, Bjarte Birkeland; Lien, Nanna; Luszczynska, Aleksandra; Moerman, Gerben; Moreno‐Maldonado, Concepcion; NicGabhainn, Saoirse; Pudule, Iveta; Rakic, Jelena Gudelj; Rito, Ana; Rønnestad, Alfred Mestad; Ulstein, Madeleine; Rutter, Harry; Klepp, Knut‐IngeThe United Nations Convention on the Rights of the Child emphasizes the importance of allowing children and adolescents to influence decisions that are important to them following their age and maturity. This paper explores the principles, practices, and implications around using parental versus child/adolescent consent when participating in social science research and policy development. Experiences from two studies are presented: The Confronting Obesity: Co-creating policy with youth (CO-CREATE) and the Health Behaviour in School-aged Children (HBSC) study, a World Health Organization (WHO) Collaborative Cross-National study. Although parental consent may be an important gatekeeper for protecting children and adolescents from potentially harmful research participation, it may also be considered an obstacle to the empowerment of children and adolescents in case they want to share their views and experiences directly. This paper argues that evaluation of possible harm should be left to ethics committees and that, if no harm related to the research participation processes is identified and the project has a clear perspective on collaborating with the target group, adolescents from the age of 12 years should be granted the legal capacity to give consent to participate in the research project. Collaboration with adolescents in the development of the research project is encouraged.
- Ethical considerations in engaging young people in European obesity prevention research: The CO‐CREATE experiencePublication . Budin‐Ljøsne, Isabelle; Ayuandini, Sherria; Baillergeau, Evelyne; Bröer, Christian; Helleve, Arnfinn; Klepp, Knut‐Inge; Kysnes, Bjarte; Lien, Nanna; Luszczynska, Aleksandra; Nesrallah, Samantha; Rito, Ana; Rutter, Harry; Samdal, Oddrun; Savona, Natalie; Veltkamp, GerliekeEngaging youth in obesity prevention research and policy action is essential to develop strategies that are relevant and sensitive to their needs. Research with young people requires critical reflection to safeguard their rights, dignity, and wellbeing. The CO-CREATE project used various methods to engage approximately 300 European youth aged 15–19 years in the development of policies to prevent adolescent obesity. This paper discusses ethical considerations made in the project pertaining to the youth's voluntary participation, their protection from obesity stigma, respect for their time, data privacy and confidentiality, power balance, and equality of opportunity to participate in the research. We describe measures implemented to prevent or limit the emergence of ethical challenges in our interaction with youth and discuss their relevance based on our experience with implementation. While some challenges seemingly were prevented, others arose related to the youth's voluntary participation, time burdens on them, and the sustainability of participation under the Covid-19 pandemic. Concrete and ongoing ethical guidance may be useful in projects aiming to interact and build collaborative relationships with youth for long periods of time.