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Autistic Adult Health and Professional Perceptions of It: evidence from the ASDEU Project

2021-05-28Journal article Open access
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dc.contributor.authorMicai, Martina
dc.contributor.authorCiaramella, Antonio
dc.contributor.authorSalvitti, Tommaso
dc.contributor.authorFulceri, Francesca
dc.contributor.authorFatta, Laura Maria
dc.contributor.authorPoustka, Luise
dc.contributor.authorDiehm, Robert
dc.contributor.authorIskrov, Georgi
dc.contributor.authorStefanov, Rumen
dc.contributor.authorGuillon, Quentin
dc.contributor.authorRogé, Bernadette
dc.contributor.authorStaines, Anthony
dc.contributor.authorSweeney, Mary Rose
dc.contributor.authorBoilson, Andrew Martin
dc.contributor.authorLeósdóttir, Thora
dc.contributor.authorSaemundsen, Evald
dc.contributor.authorMoilanen, Irma
dc.contributor.authorEbeling, Hanna
dc.contributor.authorYliherva, Anneli
dc.contributor.authorGissler, Mika
dc.contributor.authorParviainen, Tarja
dc.contributor.authorTani, Pekka
dc.contributor.authorKawa, Rafal
dc.contributor.authorVicente, Astrid
dc.contributor.authorRasga, Célia
dc.contributor.authorBudişteanu, Magdalena
dc.contributor.authorDale, Ian
dc.contributor.authorPovey, Carol
dc.contributor.authorFlores, Noelia
dc.contributor.authorJenaro, Cristina
dc.contributor.authorMonroy, Maria Luisa
dc.contributor.authorPrimo, Patricia García
dc.contributor.authorCharman, Tony
dc.contributor.authorCramer, Susanne
dc.contributor.authorWarberg, Christine Kloster
dc.contributor.authorCanal-Bedia, Ricardo
dc.contributor.authorPosada, Manuel
dc.contributor.authorScattoni, Maria Luisa
dc.contributor.authorSchendel, Diana
dc.date.accessioned2022-07-06T14:32:43Z
dc.date.available2022-07-06T14:32:43Z
dc.date.issued2021-05-28
dc.description.abstractThe Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups, <20% of responders knew an organization or clinician which has developed a way to monitor health, and prevent poor health, that works well for adults on the autism spectrum. The results point to means for better management of co-occurring conditions associated with autism in adulthood in order to reduce hospital admissions and potential areas of improvement in health and social services for autistic adults. Specifically, efforts should be focused on (1) professionals' education on risks for co-occurring conditions in autistic adults; (2) promoting preventive health behaviors; (3) making services user-friendly for autistic adults and their families; and (4) encouraging knowledge of good local services.pt_PT
dc.description.sponsorshipThis study was funded by the European Parliament and managed by the European Union, DGSANTE [Ref.: SANCO/2014/C2/035]. The Italian Ministry of Health projects Osservatorio Italiano per il monitoraggio dei disturbi dello spettro autistico (Fasc. 1S49) and I disturbi dello spettro autistico: attività previste dal decreto ministeriale del 30.12.2016 (Fasc. 2S57) granted the contribution of the Italian data.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationFront Psychiatry. 2021 May 28;12:614102. doi: 10.3389/fpsyt.2021.614102. eCollection 2021.pt_PT
dc.identifier.doi10.3389/fpsyt.2021.614102pt_PT
dc.identifier.issn1664-0640
dc.identifier.urihttp://hdl.handle.net/10400.18/8068
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherFrontiers Mediapt_PT
dc.relation.publisherversionhttps://www.frontiersin.org/articles/10.3389/fpsyt.2021.614102/fullpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAutism Spectrum Disorderpt_PT
dc.subjectAdultspt_PT
dc.subjectHealthpt_PT
dc.subjectCo-occurring Conditionspt_PT
dc.subjectServicespt_PT
dc.subjectPerturbações do Desenvolvimento Infantil e Saúde Mentalpt_PT
dc.titleAutistic Adult Health and Professional Perceptions of It: evidence from the ASDEU Projectpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.startPage614102pt_PT
oaire.citation.titleFrontiers in Psychiatrypt_PT
oaire.citation.volume12pt_PT
rcaap.embargofctAcesso de acordo com política editorial da revista.pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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