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Autism Spectrum Disorders in the European Union (ASDEU): final report: main results of the ASDEU project - 28/08/2018

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ASDEU is a pilot project funded by the European Parliament and managed by the European Commission. As the origin of this pilot project was a European Parliament decision, the EC defined and launched a call for tenders as an administrative instrument to manage that decision. This administrative circumstance providessome clues about how the tenders – the Instituto de Salud Carlos III and their coordination - has designed the structure of this final report. Conversely to other types of projects, which are structured based on decisions, linked hypotheses and methods defined by the own researchers, this call for tenders comprised several aims and commitments with the unique link that they were dealing with autism. In this way classic epidemiological questions such as prevalence estimation, problems around the early detection and intervention, economic costs, ASD policies proposals and coordination with other big European projects were included in the tenders. In addition, traditional projects activities such as coordination, dissemination and evaluation had to be implemented. In this complex framework, we decide to format the final report taking into account all these considerations and to present it using the following scheme: 1. Each aim/main task are answered in separated files/documents to facilitate their reading and understanding, instead of presenting a big document where methods and results are mixed. 2. Hence, a total of 10 documents/reports have been developed. One per each WP and main tasks (WP1_prevalence, WP1_costs WP2 to WP8) plus a main report showing the summary of results and a file with heavy annexes from the WP1 prevalence task. 3. All WP/Task reports have the same basic structure with a cover page, including funders, coordinator, title and date of the presentation to the EC; table of contents, a brief summary of that particular and specific report, the core of the report and their annexes. 4. Details of each individual report – if needed - have been also described at the beginning of the particular report (i.e.: prevalence report). Main results of the ASDEU project: This report aims to show the main findings and recommendations achieved across tasks and work packages. Comprehensive details about methods and works developed, including specific numerical data, are included in the report of each task and/or WP (separate documents).

Description

Project Coordinator: Manuel Posada de la Paz (Instituto de Salud Carlos III)
Portugal study - Autism Spectrum Disorder in the European Union (ASDEU) – Prevalence of ASD in Região Centro of Portugal.
ASDEU project - Portugal - Astrid Vicente (main researcher); Célia Rasga, João Pedro Santos (collaborators) - Departamento de Promoção da Saúde e Prevenção de Doenças Não Transmissíveis, Instituto Nacional de Saúde Doutor Ricardo Jorge)

Keywords

Autism Spectrum Disorders Prevalence Epidemiological Studies European Union Perturbações do Desenvolvimento Infantil e Saúde Mental

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