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Portuguese National Surveillance of Cerebral Palsy Registry 2005-2015 decade: clinical condition complexity of 5-year-old children not included in regular school

2019-05-23Conference object Open access
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dc.contributor.authorFolha, Teresa
dc.contributor.authorVirella, Daniel
dc.contributor.authorSantos, Ana João
dc.contributor.authorCadete, Ana
dc.contributor.authorGouveia, Rosa
dc.contributor.authorAlvarelhão, José
dc.contributor.authorCalado, Eulália
dc.contributor.authorGaia, Teresa
dc.contributor.authorAndrada, Maria da Graça
dc.contributor.authorNational Surveillance of Cerebral Palsy in Portugal
dc.date.accessioned2020-05-21T11:21:14Z
dc.date.available2020-05-21T11:21:14Z
dc.date.issued2019-05-23
dc.description.abstractIntroduction: For children with cerebral palsy (CP) attending kindergarten school promotes social and cognitive skills, which affects community participation. This study describes the association between complexity and (RS) for children with CP at 5 years old using the Portuguese National Surveillance of Cerebral Palsy Registry (PNSCPR). Patients and methods: Children residents in Portugal between 2005 and 2015 were selected from PNSCPR database. The Surveillance of Cerebral Palsy in Europe definitions, classifications and instruments were used. Children not attending RS were considered. Clinical complexity included four indicators: GMFCS (III-V); cognitive function (<50); active epilepsy and severe visual deficit. Univariate Chi-square test and logistic regression models were used to investigate association between complexity indicators and school inclusion. Results: Of 1102 children 18.5% (n=204) were not in RS. The number of indicators was significantly associated with the increase of the proportion of children not attending school: 2.2% presenting zero indicators, 11.4% one; 19.8% three; 35% four and 45.2% of children presenting all four indicators. The highest risk of not attending RS at 5 years old was observed for children indicating worse global motor function (GMFCS III-V; OR=3.9; 95% CI=2.1, 7.2; P<.0001), followed by children with cognitive deficit (<50; OR=3.3; 95% CI=1.8, 6.1; P<.0001) and active epilepsy (OR=1.9; 95% CI=1.1, 3.3; P<.05). Conclusion: Clinical complexity indicators are significantly associated with attending RS at the pre-school level. This knowledge may potentiate better inclusion experiences, the development of children is potential, committing resources and supporting families in these processes.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.urihttp://hdl.handle.net/10400.18/6738
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherInstituto Nacional de Saúde Doutor Ricardo Jorge, IPpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt_PT
dc.subjectCerebral Palsypt_PT
dc.subjectClinical Complexity Indicatorspt_PT
dc.subjectRegular School Inclusionpt_PT
dc.subjectEstados de Saúde e de Doençapt_PT
dc.subjectPrograma Vigilância Nacional da Paralisia Cerebralpt_PT
dc.titlePortuguese National Surveillance of Cerebral Palsy Registry 2005-2015 decade: clinical condition complexity of 5-year-old children not included in regular schoolpt_PT
dc.typeconference object
dspace.entity.typePublication
oaire.citation.conferencePlaceParis, Françapt_PT
oaire.citation.title31st Annual meeting of the European Academy of Childhood Disability (EACD), 23-25 May 2019pt_PT
person.familyNamefolha
person.familyNameVirella
person.familyNameCarvalho da Silva Santos
person.familyNameMarques Alvarelhão
person.familyNameAndrada
person.givenNameteresa
person.givenNameDaniel
person.givenNameAna João
person.givenNameJosé Joaquim
person.givenNameMaria da Graça
person.identifierhttps://scholar.google.com/citations?hl=pt-PT&user=ZuoM2qkAAAAJ
person.identifier.ciencia-id261A-49B5-9F1A
person.identifier.ciencia-id7E12-E842-1216
person.identifier.ciencia-id4014-D89A-5C77
person.identifier.orcid0000-0002-0437-2675
person.identifier.orcid0000-0002-5952-5632
person.identifier.orcid0000-0003-0556-5513
person.identifier.orcid0000-0002-4564-4323
person.identifier.orcid0000-0001-8439-0867
person.identifier.scopus-author-id6602564757
person.identifier.scopus-author-id55387623300
rcaap.rightsopenAccesspt_PT
rcaap.typeconferenceObjectpt_PT
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