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Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study

2022-11Journal article Restricted access
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dc.contributor.authorGuillon, Quentin
dc.contributor.authorBaduel, Sophie
dc.contributor.authorBejarano-Martín, Álvaro
dc.contributor.authorCanal-Bedia, Ricardo
dc.contributor.authorMagÁn-Maganto, María
dc.contributor.authorFernÁndez-Álvarez, Clara
dc.contributor.authorMartín-Cilleros, María Victoria
dc.contributor.authorSÁnchez-Gómez, María Cruz
dc.contributor.authorGarcía-Primo, Patricia
dc.contributor.authorRose-Sweeney, Mary
dc.contributor.authorBoilson, Andrew
dc.contributor.authorLinertovÁ, Renata
dc.contributor.authorRoeyers, Herbert
dc.contributor.authorVan der Paelt, Sara
dc.contributor.authorSchendel, Diana
dc.contributor.authorWarberg, Christine Kloster
dc.contributor.authorCramer, Susanne
dc.contributor.authorNarzisi, Antonio
dc.contributor.authorMuratori, Filippo
dc.contributor.authorScattoni, María Luisa
dc.contributor.authorMoilanen, Irma
dc.contributor.authorYliherva, Anneli
dc.contributor.authorSaemundsen, Evald
dc.contributor.authorJonsdottir, Sigridur Loa
dc.contributor.authorEfrim-Budisteanu, Magdalena
dc.contributor.authorArghir, Aurora
dc.contributor.authorPapuc, Sorina Mihaela
dc.contributor.authorVicente, Astrid
dc.contributor.authorRasga, Celia
dc.contributor.authorXenia Kafka, Johanna
dc.contributor.authorPoustka, Luise
dc.contributor.authorKothgassner, Oswald D.
dc.contributor.authorKawa, Rafal
dc.contributor.authorPisula, Ewa
dc.contributor.authorSellers, Tracey
dc.contributor.authorPosada de la Paz, Manuel
dc.contributor.authorRogé, Bernadette
dc.date.accessioned2023-03-17T14:52:53Z
dc.date.available2023-03-17T14:52:53Z
dc.date.issued2022-11
dc.description.abstractProfessional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process.pt_PT
dc.description.sponsorshipThe author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by the European Parliament and managed by the European Union, DGSANCO, (Ref: SANCO/2014/C2/035).pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationAutism. 2022 Nov;26(8):2136-2150. doi: 10.1177/13623613221080318. Epub 2022 Mar 9pt_PT
dc.identifier.doi10.1177/13623613221080318pt_PT
dc.identifier.issn1362-3613
dc.identifier.urihttp://hdl.handle.net/10400.18/8556
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherSAGE Publicationspt_PT
dc.relation.publisherversionhttps://journals.sagepub.com/doi/epub/10.1177/13623613221080318pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt_PT
dc.subjectAutismpt_PT
dc.subjectEarly Detectionpt_PT
dc.subjectParents’ Experiencespt_PT
dc.subjectSatisfactionpt_PT
dc.subjectPerturbações do Desenvolvimento Infantil e Saúde Mentalpt_PT
dc.titleDeterminants of satisfaction with the detection process of autism in Europe: Results from the ASDEU studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage2150pt_PT
oaire.citation.issue8pt_PT
oaire.citation.startPage2136pt_PT
oaire.citation.titleAutismpt_PT
oaire.citation.volume26pt_PT
rcaap.embargofctAcesso de acordo com política editorial da revista.pt_PT
rcaap.rightsembargoedAccesspt_PT
rcaap.typearticlept_PT

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