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FAIR environmental and health registry (FAIREHR)- supporting the science to policy interface and life science research, development and innovation

2023-06-05Journal article Open access
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dc.contributor.authorZare Jeddi, Maryam
dc.contributor.authorGalea, Karen S.
dc.contributor.authorViegas, Susana
dc.contributor.authorFantke, Peter
dc.contributor.authorLouro, Henriqueta
dc.contributor.authorTheunis, Jan
dc.contributor.authorGovarts, Eva
dc.contributor.authorDenys, Sébastien
dc.contributor.authorFillol, Clémence
dc.contributor.authorRambaud, Loïc
dc.contributor.authorKolossa-Gehring, Marike
dc.contributor.authorSantonen, Tiina
dc.contributor.authorvan der Voet, Hilko
dc.contributor.authorGhosh, Manosij
dc.contributor.authorCosta, Carla
dc.contributor.authorTeixeira, João Paulo
dc.contributor.authorVerhagen, Hans
dc.contributor.authorDuca, Radu-Corneliu
dc.contributor.authorVan Nieuwenhuyse, An
dc.contributor.authorJones, Kate
dc.contributor.authorSams, Craig
dc.contributor.authorSepai, Ovnair
dc.contributor.authorTranfo, Giovanna
dc.contributor.authorBakker, Martine
dc.contributor.authorPalmen, Nicole
dc.contributor.authorvan Klaveren, Jacob
dc.contributor.authorScheepers, Paul T. J.
dc.contributor.authorPaini, Alicia
dc.contributor.authorCanova, Cristina
dc.contributor.authorvon Goetz, Natalie
dc.contributor.authorKatsonouri, Andromachi
dc.contributor.authorKarakitsios, Spyros
dc.contributor.authorSarigiannis, Dimosthenis A.
dc.contributor.authorBessems, Jos
dc.contributor.authorMachera, Kyriaki
dc.contributor.authorHarrad, Stuart
dc.contributor.authorHopf, Nancy B.
dc.date.accessioned2023-10-06T13:47:43Z
dc.date.available2023-10-06T13:47:43Z
dc.date.issued2023-06-05
dc.description.abstractThe environmental impact on health is an inevitable by-product of human activity. Environmental health sciences is a multidisciplinary field addressing complex issues on how people are exposed to hazardous chemicals that can potentially affect adversely the health of present and future generations. Exposure sciences and environmental epidemiology are becoming increasingly data-driven and their efficiency and effectiveness can significantly improve by implementing the FAIR (findable, accessible, interoperable, reusable) principles for scientific data management and stewardship. This will enable data integration, interoperability and (re)use while also facilitating the use of new and powerful analytical tools such as artificial intelligence and machine learning in the benefit of public health policy, and research, development and innovation (RDI). Early research planning is critical to ensuring data is FAIR at the outset. This entails a well-informed and planned strategy concerning the identification of appropriate data and metadata to be gathered, along with established procedures for their collection, documentation, and management. Furthermore, suitable approaches must be implemented to evaluate and ensure the quality of the data. Therefore, the 'Europe Regional Chapter of the International Society of Exposure Science' (ISES Europe) human biomonitoring working group (ISES Europe HBM WG) proposes the development of a FAIR Environment and health registry (FAIREHR) (hereafter FAIREHR). FAIR Environment and health registry offers preregistration of studies on exposure sciences and environmental epidemiology using HBM (as a starting point) across all areas of environmental and occupational health globally. The registry is proposed to receive a dedicated web-based interface, to be electronically searchable and to be available to all relevant data providers, users and stakeholders. Planned Human biomonitoring studies would ideally be registered before formal recruitment of study participants. The resulting FAIREHR would contain public records of metadata such as study design, data management, an audit trail of major changes to planned methods, details of when the study will be completed, and links to resulting publications and data repositories when provided by the authors. The FAIREHR would function as an integrated platform designed to cater to the needs of scientists, companies, publishers, and policymakers by providing user-friendly features. The implementation of FAIREHR is expected to yield significant benefits in terms of enabling more effective utilization of human biomonitoring (HBM) data.pt_PT
dc.description.sponsorshipPARC project (grant no. 101057014) funded under the European Union’s Horizon Europe Research and Innovation program.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationFront Toxicol. 2023 Jun 5:5:1116707. doi: 10.3389/ftox.2023.1116707. eCollection 2023.pt_PT
dc.identifier.doi10.3389/ftox.2023.1116707pt_PT
dc.identifier.issn2673-3080
dc.identifier.urihttp://hdl.handle.net/10400.18/8670
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherFrontiers Mediapt_PT
dc.relation101057014pt_PT
dc.relation.publisherversionhttps://www.frontiersin.org/articles/10.3389/ftox.2023.1116707/fullpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectData-driven Decision Makingpt_PT
dc.subjectEnvironmental Medicinept_PT
dc.subjectHuman Biomonitoringpt_PT
dc.subjectFAIR Datapt_PT
dc.subjectExposure Sciencept_PT
dc.subjectExposure-disease Continuumpt_PT
dc.subjectMetadatapt_PT
dc.subjectOpen Sciencept_PT
dc.subjectPreregistrationpt_PT
dc.subjectReal-world Datapt_PT
dc.subjectEnvironmental Genotoxicitypt_PT
dc.subjectGenotoxicidade Ambientalpt_PT
dc.titleFAIR environmental and health registry (FAIREHR)- supporting the science to policy interface and life science research, development and innovationpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.startPage1116707pt_PT
oaire.citation.titleFrontiers in Toxicologypt_PT
oaire.citation.volume5pt_PT
person.familyNameLouro
person.givenNameHenriqueta
person.identifier157627
person.identifier.ciencia-id721D-2BB1-7DB1
person.identifier.orcid0000-0001-9744-7332
person.identifier.scopus-author-id6507971479
rcaap.embargofctAcesso de acordo com política editorial da revistapt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication2361a951-8b9a-4b90-92d6-f6384003a242
relation.isAuthorOfPublication.latestForDiscovery2361a951-8b9a-4b90-92d6-f6384003a242

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