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Publicação
Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
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Orientador(es)
Resumo(s)
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and postdiagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
Descrição
Palavras-chave
Autism Spectrum Disorder Adults Diagnosis Services Perturbações do Desenvolvimento Infantil e Saúde Mental
Contexto Educativo
Citação
J Autism Dev Disord. 2021 Nov;51(11):4129-4146. doi: 10.1007/s10803-021-04873-5. Epub 2021 Jan 27.
Editora
Springer