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|Title: ||Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies|
|Authors: ||Loane, Maria|
EUROCAT Working Group
|Keywords: ||Congenital Anomalies|
Estados de Saúde e de Doença
|Issue Date: ||4-Mar-2011|
|Publisher: ||Wiley-Blackwell - Wiley-Liss|
|Citation: ||Birth Defects Res A Clin Mol Teratol. 2011 Mar;91 Suppl 1:S23-30. doi: 10.1002/bdra.20779. Epub 2011 Mar 7|
|Abstract: ||The European Surveillance of Congenital Anomalies (EUROCAT) network of population-based congenital
anomaly registries is an important source of epidemiologic information on congenital anomalies in Europe
covering live births, fetal deaths from 20 weeks gestation, and terminations of pregnancy for fetal anomaly.
EUROCAT’s policy is to strive for high-quality data, while ensuring consistency and transparency across all
member registries. A set of 30 data quality indicators (DQIs) was developed to assess five key elements of
data quality: completeness of case ascertainment, accuracy of diagnosis, completeness of information on
EUROCAT variables, timeliness of data transmission, and availability of population denominator information.
This article describes each of the individual DQIs and presents the output for each registry as well as the
EUROCAT (unweighted) average, for 29 full member registries for 2004–2008. This information is also available
on the EUROCAT website for previous years. The EUROCAT DQIs allow registries to evaluate their performance
in relation to other registries and allows appropriate interpretations to be made of the data collected.
The DQIs provide direction for improving data collection and ascertainment, and they allow annual assessment
for monitoring continuous improvement. The DQI are constantly reviewed and refined to best document
registry procedures and processes regarding data collection, to ensure appropriateness of DQI, and to ensure
transparency so that the data collected can make a substantial and useful contribution to epidemiologic
research on congenital anomalies.|
|Description: ||EUROCAT Working group collaborator: Carlos Dias|
|Peer Reviewed: ||yes|
|Publisher version: ||http://onlinelibrary.wiley.com/doi/10.1002/bdra.20779/pdf|
|Appears in Collections:||DEP - Artigos em revistas internacionais|
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