Repositório Científico do Instituto Nacional de Saúde >
Departamento de Epidemiologia >
DEP - Artigos em revistas internacionais >

Please use this identifier to cite or link to this item: http://hdl.handle.net/10400.18/585

Título: Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies
Autor: Loane, Maria
Dolk, Helen
Garne, Ester
Greenlees, Ruth
EUROCAT Working Group
Palavras-chave: Congenital Anomalies
Completeness
Registries
Ascertainment
Data Quality
Estados de Saúde e de Doença
RENAC
Issue Date: 4-Mar-2011
Editora: Wiley-Blackwell - Wiley-Liss
Citação: Birth Defects Res A Clin Mol Teratol. 2011 Mar;91 Suppl 1:S23-30. doi: 10.1002/bdra.20779. Epub 2011 Mar 7
Resumo: The European Surveillance of Congenital Anomalies (EUROCAT) network of population-based congenital anomaly registries is an important source of epidemiologic information on congenital anomalies in Europe covering live births, fetal deaths from 20 weeks gestation, and terminations of pregnancy for fetal anomaly. EUROCAT’s policy is to strive for high-quality data, while ensuring consistency and transparency across all member registries. A set of 30 data quality indicators (DQIs) was developed to assess five key elements of data quality: completeness of case ascertainment, accuracy of diagnosis, completeness of information on EUROCAT variables, timeliness of data transmission, and availability of population denominator information. This article describes each of the individual DQIs and presents the output for each registry as well as the EUROCAT (unweighted) average, for 29 full member registries for 2004–2008. This information is also available on the EUROCAT website for previous years. The EUROCAT DQIs allow registries to evaluate their performance in relation to other registries and allows appropriate interpretations to be made of the data collected. The DQIs provide direction for improving data collection and ascertainment, and they allow annual assessment for monitoring continuous improvement. The DQI are constantly reviewed and refined to best document registry procedures and processes regarding data collection, to ensure appropriateness of DQI, and to ensure transparency so that the data collected can make a substantial and useful contribution to epidemiologic research on congenital anomalies.
Descrição: EUROCAT Working group collaborator: Carlos Dias
Arbitragem científica: yes
URI: http://hdl.handle.net/10400.18/585
ISSN: 1542-0752
Versão do Editor: http://onlinelibrary.wiley.com/doi/10.1002/bdra.20779/pdf
Appears in Collections:DEP - Artigos em revistas internacionais

Files in This Item:

File Description SizeFormat
Paper 3 - EUROCAT Data Quality Indicators for population-based registries of congenital anomalies.pdf356,32 kBAdobe PDFView/Open
Restrict Access. You can request a copy!
Statistics
FacebookTwitterDeliciousLinkedInDiggGoogle BookmarksMySpaceOrkut
Formato BibTex mendeley Endnote Logotipo do DeGóis 

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.

 

  © 2010 www.insa.pt - Todos os direitos reservados | Feedback Ministério da Saúde
Promotores do RCAAP   Financiadores do RCAAP

Fundação para a Ciência e a Tecnologia Universidade do Minho   Governo Português Ministério da Educação e Ciência PO Sociedade do Conhecimento (POSC) Portal oficial da União Europeia