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Title: Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies
Author: Loane, Maria
Dolk, Helen
Garne, Ester
Greenlees, Ruth
EUROCAT Working Group
Keywords: Congenital Anomalies
Data Quality
Estados de Saúde e de Doença
Issue Date: 4-Mar-2011
Publisher: Wiley-Blackwell - Wiley-Liss
Citation: Birth Defects Res A Clin Mol Teratol. 2011 Mar;91 Suppl 1:S23-30. doi: 10.1002/bdra.20779. Epub 2011 Mar 7
Abstract: The European Surveillance of Congenital Anomalies (EUROCAT) network of population-based congenital anomaly registries is an important source of epidemiologic information on congenital anomalies in Europe covering live births, fetal deaths from 20 weeks gestation, and terminations of pregnancy for fetal anomaly. EUROCAT’s policy is to strive for high-quality data, while ensuring consistency and transparency across all member registries. A set of 30 data quality indicators (DQIs) was developed to assess five key elements of data quality: completeness of case ascertainment, accuracy of diagnosis, completeness of information on EUROCAT variables, timeliness of data transmission, and availability of population denominator information. This article describes each of the individual DQIs and presents the output for each registry as well as the EUROCAT (unweighted) average, for 29 full member registries for 2004–2008. This information is also available on the EUROCAT website for previous years. The EUROCAT DQIs allow registries to evaluate their performance in relation to other registries and allows appropriate interpretations to be made of the data collected. The DQIs provide direction for improving data collection and ascertainment, and they allow annual assessment for monitoring continuous improvement. The DQI are constantly reviewed and refined to best document registry procedures and processes regarding data collection, to ensure appropriateness of DQI, and to ensure transparency so that the data collected can make a substantial and useful contribution to epidemiologic research on congenital anomalies.
Description: EUROCAT Working group collaborator: Carlos Dias
Peer review: yes
ISSN: 1542-0752
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Appears in Collections:DEP - Artigos em revistas internacionais

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